Mommies, does anyone have acquaintances with children suffering from i…

Mommies, does anyone have acquaintances with children suffering from ichthyosis (inborn dryness of the skin)? My daughter's skin looked like it did in the photo. For many years we suffered, all dermatologists said the same thing - just smear vaseline because it wouldn't help anyway, it's incurable. You just need to moisturize the skin. And we did that every evening by smearing vaseline, but it didn't help at all. The daughter started getting fussy, saying it was uncomfortable to sleep, so she would not sleep. Her bedding and clothes were stained, her skin wasn't breathing... In general, I always worried about her, crying every night. But then I started looking for good remedies